Take Back Your Life – Coping with Change

Coping with Change

To take back your life you have to start coping with change.

 

Welcome To Year 3!

Coping with change has basically been the theme of 2020 thus far. Humans don’t particularly fair well with change even if we initiate it. Change causes stress and we know that stress is bad for our brains.

Making changes in your attitude & behaviors as your caring for a loved one takes courage.  Implementing change also requires practice, patience, and perseverance. The process takes time and you may need to revisit some issues repeatedly.  Change is more than a one-shot cure. 

As a caregiver, your feelings may revolve around the enormous responsibilities, obligations, and stresses you face every day. Maybe you need to make a change in a relationship with other family members.  The reality is that change is stressful. You need to decide if you want to deal with the stress of the same old routine or deal with the stress of trying something new. Change is possible! What have you got to lose?

Take Back Your Life by Loren Gelberg Goff

Take Back Your Life Website

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Related Episodes

Caregiver Confessions

Caregiver Stress Reduction Techniques

 

 

The Last Goodbye – A Tribute To My Mom

Goodbye Mom

My last goodbye to Mom was on 3-31-2020

 

They say Alzheimer’s is a series of goodbyes. And It’s true.  I have said goodbye to so many things I had with Mom. What has been a surprise is that the very last goodbye has been harder than I ever expected.

I said goodbye to Mom knowing who I was on my 51st birthday. Then I said goodbye to understanding her conversations late last year. Finally, I said goodbye to walking in the regional park, watching kids at the swimming pool, or even going out to eat.

What I didn’t expect, and surprisingly wasn’t ready for was to say goodbye on March 31st, 2020. Mom lived in the memory care residence for 3 years and 2 weeks. Both my sister and I thought she’d be there a lot longer. A whole lot longer.

Many people have asked me if she died from the Covid-19 virus. The answer to that is no. She died from Alzheimer’s disease. I have her death certificate and her official cause of death is not eating or drinking for 2 days caused by Alzheimer’s.

In this episode, you’ll hear from Laura (oldest grandkid), her Fading Memories son-in-law, and a really, long time friend. I hope you enjoy this special tribute.

Another episode about Mom

Join Fading Memories On Social Media!

By all means, share this podcast with other caregivers!  You can find us on social media at the following links.  Facebook    Instagram    Twitter

Also, make sure to subscribe to our YouTube channel. There you can see me in “action” and watch the bonus videos I share.

Bonus – Akum – Research & fundraising

Fundraising

How could I resist when a young man who wants to cure Alzheimer’s wants help with his fundraising.

 

How could I resist a humble fundraising assistance request? When it comes from a young man that wants to cure Alzheimer’s, I couldn’t. Instead of just resharing posts on Instagram, we created this bonus episode.

In this bonus episode, I talk to Akum Dhillion. He is a young man who was inspired by his Grandmother to go into Alzheimer’s research. When he reached out to me to ask for assistance boosting his Instagram account, I asked if he would also like a bonus episode. Of course, he said yes.

I think you’ll really enjoy this short, heartwarming story about a young person wanting and succeeding at making a difference. At the tender age of 12, Akum decided he was going to cure Alzheimer’s.

What’s an Alzheimer’s podcast to do but help?

Your donation supports vital research, programs, and resources for those living with Alzheimer’s. Akum is working with the Virginia chapter of the Alzheimer’s Association.   They are the world’s largest nonprofit funder of Alzheimer’s research.

Some of the things the Alzheimer’s Assoc. funds are: Care & Support. They work nationally & locally to provide care & support for those affected by Alzheimer’s & other dementias. As the largest nonprofit funder of Alzheimer’s research. The association is committed to advancing vital research towards methods of treatment, prevention, and ultimately, a cure.

Finally, and this is where Akum & I play a part, The Association is the leading voice for Alzheimer’s disease advocacy. The Association advocates for critical Alzheimer’s research and care initiatives at the state and federal level

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By all means, share this podcast with other caregivers!  You can find us on social media at the following links.  Facebook    Instagram    Twitter

Why We Walk – Alzheimer’s Fundraising

 

Feed Your Brain for Cognitive Health

Feeding brain image

Feeing Your Brain is crucial for keeping your cognitive health.

 

In general, being able to feed your brain is crucial to maintaining your cognitive health. Seemingly, everywhere I turn, every new guest I talk to, the subject turns to food. Specifically, it turns to the topic of healthy food and how it’s important for our total health.

In this episode, I talk to Mathew John. He is helping care for his Dad who has mid-stage Alzheimer’s. Taking the lemons of an Alzheimer’s diagnosis and turning it into lemonade was how Matthew coped. Joining the Alzheimer’s Association and being an advocate for education was step one. Step two happened almost by accident.

Traveling to visit Matt, his parents experienced a long, exhausting day. His Dad suffered mentally and physically in ways most of us don’t experience. Looking for ways to help him overcome this travel exhaustion, Matt and his Mom did quite a bit of research.

Would it surprise anyone to realize that hydration and proper nutrition were high on the list of ways to help? Good food, water, and sleep. That’s what was needed. This research led him to look for ways to easily feed your brain in a healthy and simple way.

Reaching for bars or fast food is how many of us eat on-the-go.  Matts research led him to create RememBars. These are specifically designed to feed your brain, on-the-go, in a healthy way.

This is Your Brain on Nutrition

Remembars Website

Text a purple heart to 24365 for brain health information

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Caregiving Challenges In A Covid-19 World

Covid Caregiving Challenges

Covid-19 is causing caregiving challenges that none of us expected.

Caregiving has enough challenges. Adding in our new challenges due to the Covid-19 virus is almost too much. I’ve been checking in with past guests to see how they’re coping. This episode is with Richard Creighton. He was one of two guests on the Caregiver Grief episode.

Richard is caring for his wife Kate. Our conversation details how the Shetler-in-place mandates are affecting their daily life. Both he and Kate are handling the changes well, However, drastic changes in daily life for someone living with Alzheimer’s isn’t ideal.

Kate has had changes that may or may not be related to the changes they’re experiencing. Kate is in the very advanced stages of Alzheimer’s so it’s impossible to know what changes are related to the disease and which are to changes in daily life.

Even when this crazy time of sheltering-in-place and social distancing is over, these techniques will still be relevant. Caregivers need as many strategies as possible whether it’s normal day-to-day caring or caring during this Covid-19 crisis.

Useful Episode on Caregiver Stress-Reducing Techniques (they worked!)

Richards Blog (Great reading!)

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Choosing Joy – A Book of Alzheimer’s Hope

 

Choosing Joy book cover

Choosing Joy shows us that there is hope even with Alzheimer’s.

Choosing Joy. Is it even possible? Most see a diagnosis of Alzheimer’s as the beginning of a sad journey. A journey that will be filled with frustration, sadness and possibly worse.  Finding positive stories is a challenge. But, what if, just by the way we approach caring, we can have a better outcome? If we’re really lucky, maybe we can slow their decline. Maybe they even can have improvements in some areas of their lives.

What would that journey look like and is it even possible? Reading Choosing Joy, an Alzheimer’s book of hope I saw what could be possible if we approach this diagnosis with a different frame of mind. While every person with Alzheimer’s is different, I present this episode of joy to you in the hope that you find a way to Choose Joy despite Alzheimer’s.

Living With Alzheimer’s

Join Fading Memories On Social Media!

By all means, share this podcast with other caregivers!  You can find us on social media at the following links.  Facebook    Instagram    Twitter

I share more about my journey with Mom, stuff that’s going on in my own life and most importantly, cute dog photos and videos.

Also, check out our new YouTube channel where you can see us in action!

You Are The Expert with The Dementia Nurse

The Dementia Nurse on You Are The Expert

Gail Wetherill, aka, the Dementia Nurse, talks about how “You Are The Expert”.

Do you ever feel like the medical profession has no idea how to handle a person living with Alzheimer’s? Have you had to educate doctors, nurses and every medical professional you encounter?

What’s been your experience after you’ve politely tried to help them help your loved one?  If you’re like me, it hasn’t been a great experience. Navigating our health care, caring for someone with a serious diagnosis and then being treated at best like the patients’ personal driver is enough to make us want to quit dealing with the health care system altogether.

We know we can’t, so what alternatives can we take that won’t make the situation worse? How can we get the care for our loved one while also maintaining a professional relationship with their doctor?

My conversation with Gail Westerhill on this topic will inform and delight you. She will teach you with great wit & wisdom why You Are The Expert (on your loved one).

Health Care Advocacy for Seniors episode

Join Fading Memories On Social Media!

By all means, share this podcast with other caregivers!  You can find us on social media at the following links.  Facebook    Instagram    Twitter

I share more about my journey with Mom, stuff that’s going on in my own life and most importantly, cute dog photos and videos.

Also, check out our new YouTube channel where you can see us in action!

Coping for Caregivers in a Covid-19 World

Covid-19 Health Alert

Covid-19 is causing caregivers to have additional struggles.

Covid-19 has upended our world. As if Alzheimer’s weren’t bad enough, now we have to contend with more uncertainties than ever! I thought it would be helpful to check in with past guests, see how they’re coping and get tips to share.

This bonus episode check-in was with Susan Straley the author of “Alzheimer’s Trippin’ With George”. Her husband is no longer with us but we discussed how she would have handled his needs in this crazy time. Certainly, some of her ideas will be ones you can implement.

Even when this crazy time of sheltering-in-place and social distancing is over, these techniques will still be relevant. Caregivers need as many strategies as possible whether it’s normal day-to-day caring or caring during this Covid-19 crisis.

Useful Episode on Caregiver Stress-Reducing Techniques (they worked!)

Join Fading Memories On Social Media!

By all means, share this podcast with other caregivers!  You can find us on social media at the following links.  Facebook    Instagram    Twitter

I share more about my journey with Mom, stuff that’s going on in my own life and most importantly, cute dog photos and videos.

Also, check out our new YouTube channel where you can see us in action!

Food As Medicine? Dawn Renee’s Caregiving Experiences

Food As Medicine

If we are what we eat, can food be used as a medicine?

Can we use food as a medicine?  My guest, Dawn Renee has a compelling story of self-care & recovery. After a debilitating month in bed and a lifetime of chronic illnesses, Dawn believes you can. She has spent the past decade learning from others while assisting them with their daily health issues. Their experiences demonstrate that nutritional support and detoxing the body are crucial to maintaining good health.  

Dawn Renee is currently devoted to the care of a woman with stage 4 ALS. Focused care for someone navigating so many obstacles has provided challenges for learning. As a result, she has gained an intimate understanding of how nutritional support affects us, our health and our cognitive well being.

Suggestions from Dawn (some of these I’ve also found to help my brain sharpness);

Eating eggs help rebuild the brain barrier myelin and nerve support.

Omega-3 fatty acids – also known as healthy fats are important for overall health.

Consider probiotics for improved gut health. There is research showing a “leaky” gut causes all sorts of problems.

Drink lots of water. It won’t “rust your insides” as my Mom used to say. The worst thing that can happen (unless you REALLY overdo it) is you’ll be well acquainted with all the bathrooms near you!

The Mind Diet – A Detailed Guide for Beginners

Tea & Brain Health

This Is Your Brain on Nutrition

Join Fading Memories On Social Media!

By all means, share this podcast with other caregivers!  You can find us on social media at the following links.  Facebook    Instagram    Twitter

I share more about my journey with Mom, stuff that’s going on in my own life and most importantly, cute dog photos and videos.

Also, check out our new YouTube channel where you can see us in action!

Caregiver Stress Reduction Techniques

Mindfulness for Stress Reduction

Caregivers need as many stress reduction techniques as possible.

Stress reduction is a critical component of self-care when we caregiving. Personally, I tried to dismiss negative feelings as unhelpful until I talked to my guest Scott Lavitt. Scott is helping his mother care for his Dad who is in the mid-stages of Alzheimer’s.

Scott taught me simple mindfulness techniques that surprised me by how easily they worked. Facing a situation for which I had no control I embraced the anger that I was feeling. By embracing that feeling I became aware of why I felt that way. That awareness gave me some peace.

Additionally, that feeling of peace allowed me to realize that I am doing my best in a really difficult situation. I wish that I could say this awareness and peace made making a tough decision easier, it did not. What I did gain was the self-understanding that I was handling things as well as they could be handled.

Everyone needs to learn how to be kinder to themselves, but it’s especially important for those of us caring for a loved one with memory loss.

Scott Lavitt’s Facebook page, full of great videos

Giving a Caregiver Help

Join Fading Memories On Social Media!

By all means, share this podcast with other caregivers!  You can find us on social media at the following links.  Facebook    Instagram    Twitter

I share more about my journey with Mom, stuff that’s going on in my own life and most importantly, cute dog photos and videos.

Also, check out our new YouTube channel where you can see us in action!